The Best Parkinsons Discussion Group Ever

Sunday Connections Parkinsons Discussion Group

Recovery from Parkinson’s disease can be rocky and involve unexpected setbacks. Just when it looks like symptoms have quieted they sometimes flare back up and start stirring up trouble for you and everyone else in your family. And when this happens, where in the world do you turn?

Everyone on the road to recovery needs support from time to time. Most get an infusion of energy to make changes in their life (like after attending the Parkinsons Recovery Summit) but the burst of energy can quickly fizzle with the first set back.

Parkinsons Recovery Sunday Connections provides the ongoing support that is important to the recovery process. The programs are hosted by a panel of eight volunteer hosts. Access to the programs Sunday afternoons is free and open to all.

Sunday Connections is one among many support services provided by Parkinsons Recovery which provides ongoing support, information and resources to persons who currently experience the symptoms of Parkinson’s disease. Sources of support are plentiful: the Parkinsons Recovery Radio Show, Parkinsons Recovery Summits, newsletters, Free Symptom Tracking among others.

When I host Sunday Connections, I answer a long list of questions that are submitted. Answers to the questions that have been asked and answered are categorized, edited and posted on the Sunday Connections Archives. Recordings of the complete Sunday Connections programs are also posted in the Archives.

In summary, you can always get the information for free on some Sundays (but not all Sundays!)  You just have to connect in on your phone or computer.

I send out notices of the free Sunday Connections programs in my free newsletter as do other hosts.

 

Hosts

Presented below is the rotating panel of volunteer hosts for Sunday Connections. Click on their picture for a speedy connection to their website.

Why Sunday Connections?

 

Sunday Connections offers support that is needed by anyone on the road to recovery on Sunday afternoons at 2 PM Pacific Time (5 PM Eastern). Sunday Connections is hosted and facilitated by a member from our rotating panel of hosts.  Each and every Sunday you can share your concerns, ask questions, offer suggestions and interact with others on the road to recovery. Some people prefer to simply listen to the discussion or the answers to questions.

Hello Robert,

Thank you so much for your talk this morning (my time). It was soooooo informative and a great way to start the week. Sunday Connections is a great idea and I look forward to listening to today’s show again when the link comes . Keep up the good work.
Thank you. 

Regards

Margaret Brown

Sunday Connections is a unique way to recharge the motivation to recover which is especially important during those days when you become discouraged and depressed about prospects for recovery.

Sunday Connections is a live, interactive discussion that is hosted each week. The panel of rotating hosts consists of persons who are themselves on the road to recovery. Many of the hosts have themselves been diagnosed with Parkinson’s. Some have fully recovered and are symptom free. Others have been successful in reversing some, if not many symptoms. Some hosts are coaches. Still other hosts such as myself write books about Parkinson’s and are international speakers. All of the hosts have been guests on the Parkinsons Recovery Radio Show. You can learn more about each host by reading their bio listed below and listening to the archive of their radio show.

Why Connect with Hosts Sundays?

Sunday Connections offers ongoing support so that when you hit up against a snag or a challenge you did not see coming, there is a reliable way to get support and help when you need it each and every Sunday. Connecting with others who are confronting the same challenges and frustrations makes it possible to discover answers to  your questions and find suggestions on how to solve any  and all challenges you are presently encountering. You also get to connect with a wide variety of hosts who have been guests on the Parkinsons Recovery Radio Show at one time or another.

Make no mistake about it. Hosts offer different approaches for facilitating recovery from Parkinson’s. When you connect in Sundays on a regular basis, you get to know more about how people with Parkinson’s have gone about reversing their own symptoms. And why not? It does not cost anything.

Thank you so very much for the discussion and information on LDN.
God bless you and your work. I knew it would be informative – which
it truly was on so many levels. Again, thank you for the invitation to join you and Lexie.

The mind is a powerful tool…..and with Parkinson’s the medical community gives that NO HOPE signal – which makes people sicker. Again, your work is from the light –

BLESS you, Robert.

Janis Cellini

With Sunday Connections …

  • Get current information on new therapeutic discoveries
  • Connect with others on the road to recovery
  • Obtain support from Parkinson’s coaches and other hosts
  • Hear suggestions on how to reverse symptoms

You do not need to subscribe to anything to connect Sundays.
All programs are free. 

How Can I Get Sunday Connection Notices

Sign up for my free newsletter. I send out notices to my list when I host. I also suggest you sign up for the newsletters from other hosts to make sure you get notifications every Sunday on every program. I make every attempt to post information about Sunday programs all over the place – on the Parkinsons Recovery Blog and elsewhere. Notices should be easy to find most weeks.

 

 I love the Sunday Connections series!
It really keeps me optimistic.

          Ruth

How do I Connect in to Sunday Connections? 

There is a phone number to call for each Sunday program along with a conference ID. You can always connect in via a phone if you do not have a computer. You will receive a phone number to call and a conference ID which can be used if you want to call rather than connect through your computer. Many people ask questions in advance of the program which gives hosts an opportunity to research them before the program airs live.

If you do have a computer, you can always listen to a program from your computer. If you want to call into the program and ask questions you can connect to the session from your computer using Skype. Or, connect via your cell phone or land line:

Anyone from any country living anywhere on the globe can participate using Skype for free! 

You can also write in questions on the Event Page page that will be addressed by the host and the participants during the session. Each program has a different URL event page. Submit your questions directly on the Event Page or email your question to the host in advance of the program.

Host Biographies

Every host of a Sunday Connections has been a guest on the Parkinsons Recovery Radio Show at one time or another.

Background information on the rotating panel of hosts follows with the date their radio show aired. If you would like to listen to their radio show, click on the radio show link and be sure and scroll back to their show. All shows have been archived.

Judith Lynne   March 28, 2012 Radio Show

Descended from many generations of performers and musicians, Judith Lynne began singing sometime around 9 pm on April 9th, 1951. Her passion for singing fueled her lifetime quest to understand the holistic nature of the voice. Combining her extensive musical studies with her lifetime exploration of world religions, yoga and metaphysics, Judith Lynne has developed leading edge sound healing methods, Harmonic Healing TM and Vocal Energetics TM. Diagnosed with Parkinson’s in 2009, she has found her protocols to be helpful in her personal healing regimen. Recognized for her special voice, Judith uses it to “read”, adjust and harmonize the frequencies of her clients, and offers easy, practical tools for using the voice for self-healing and meditation. Her clients appreciate her compassionate and insightful counsel and are grateful for the sense of well being that accompanies their sessions. Residing in Portland, OR, and working internationally, Judith offers sessions, workshops, and monthly meditations in person and via telephone and Skype. For more information visit:
http://www.partneringwithparkinsons.com

John Baumann June 22, 2011 Radio Show

Diagnosed in 2002 at the age of 41, John Baumann worked 6 more years as an executive officer of a major corporation before dedicating his life, on a full-time basis, to making a difference in the Parkinson’s community. John has inspired those with Parkinson’s to live their lives to the fullest, family care partners to realize what a difference they make and how much they are appreciated, and professional healthcare providers to maintain their passion and commitment to the cause. John has traveled far and wide as keynote speaker (TheInspiringEsquire.com) at symposiums to bring his message of hope and positive perspective (Reclaiming Posi-spective) including, among other locations, Cincinnati at the Sunflower Revolution, Indianapolis before a Pacers game, Houston, Birmingham, Burlington, Saskatchewan in Canada, St. Thomas of the Virgin Islands and often in his hometown of Louisville.

John has also written a book providing a template for others to live life to the fullest with Parkinson’s Disease, Decide Success (Twelve Action Steps) – You Ain’t Dead Yet. Hear about how, after almost giving up looking for someone to enter into a long-term relationship with in light of his Parkinsons and the prospect of being a care partner, John met an angel who fell in love with him and is a trainer and nutritionalist to boot.

Lexie Lindstron     March 14, 2012 Radio Show

I was officially diagnosed with PD in Nov. 2008, however my non-motor symptoms of PD actually began 20 years before that time, shortly after a devastating divorce that turned my entire life upside down. Since my non-motor symptoms presented themselves at a time when a diagnosis was difficult without the known motor symptoms of PD, I was treated for each symptom individually. At that time no doctor was able to “connect the dots” and inform me that I had PD way back then, so I am now considered a Young-Onset Person with Parkinson’s Disease since my PD actually began 20 years before my official diagnosis in 2008.

My first non-motor symptom at 41 years of age began with a total loss of smell, followed by severe anxiety, insomnia, IBS, chronic constipation and almost uncontrollable bladder spasms (I was diagnosed with Neurogenic Bladder Spasms, which were determined to be “idopathic” since I had no known “symptoms” of PD at that time, and MS was ruled out with an MRI of my brain).

In 2008 my first motor symptoms surfaced, which began with a dragging right foot, right big toe tremors and soon progressed on to bradykinesia, soft-crackly voice, small handwriting and occasional right side tremors and again even more severe anxiety and insomnia, along with a debilitating fatigue.  I consulted with 3 Neurologists to confirm my diagnosis in 2008 and all 3 said that I had Parkinson’s Disease. Since I was working full time in a very high stress executive sales position, at that time my only choice was to start on the conventional PD medications.  For me it was Azilect, the Agonist – ReQuip (which was a disaster for me!), Sinemet and Amantadine).

As soon as I was diagnosed I was devastated to say the least!  Yet, I became determined not to go down the “no hope” conventional medicine path all the Neurologists were recommending.  Although it was necessary in the beginning to control my symptoms, I soon began to heavily research alternative modalities for my PD, because it has always been my personal belief that there is no such thing as a disease without “a cure”.  While I understood that most diseases cannot be “cured” with conventional medicine, there was a whole world out there of non-conventional options, and it became my obsession to find out what that would be for me.

Within a few months I discovered a little known, proven safe in very high doses (50 mg.), FDA approved, side-effect free, prescription medication that was being prescribed by some”cutting edge” M.D.’s and Naturopathic Doctors in minute, homeopathic doses for multitudes of auto-immune diseases and for Parkinson’s Disease!  People who were taking it were reportedly having fantastic successes!  Their symptoms were being managed and after time, they were having a REVERSAL of symptoms!

I have been taking this remarkable medication called Low Dose Naltrexone, or LDN, for a total of 5 years now and have had nothing but amazing benefits.  LDN has allowed me to titrate off of ALL of my PD medications except for an occasional dose of Sinemet, when I am anticipating a long and tiring day (I take Sinemet as a “band-aid” only when needed – about twice a month!)

Within 6 months of taking LDN, I was able to titrate off of the majority of my PD meds and was having good symptom control!  After about a year and a half my PD symptoms began to REVERSE themselves, and now, after 5 years, I have about 85% of my sense of smell back, along with marked reversals in ALL of the symptoms I was plagued with.  No one looking at me today would know I have Parkinson’s Disease!  Is it a “cure”? – No – if you stop taking LDN, after about a week, your symptoms will start to return.  However LDN is the safest and best, non-toxic symptom control (and reversal!) option that I know of, that is not only beneficial for your PD, but is extremely beneficial for your entire body. LDN works through your own natural endorphin system to boost your immune system, thus shielding you from common illnesses like colds and flu, and for me, most importantly, giving me my life back by controlling my Parkinson’s Disease!  It is safe and inexpensive ($35.00 per month – although it must be purchased with an rx from a doctor at a Compounding Pharmacy that understands how to compound LDN in 3 to 4.5mg doses).  For most people with PD it can be a life changing experience, as it has been for me!

For more information on Low Dose Naltrexone, please go to the LDN Blog:
and the LDN website:

 

John O’Dwyer October 17, 2012 Radio Show

John O’Dwyer grew up in Boulder City, Nevada. In 1962, at age 19, a longevity-seeking seed was planted when his father died suddenly at age 58. John, despite being athletic, felt better after taking some food supplements at age 27, became a “health nut,” and began researching health as a hobby. John suffered from back pain for decades and visited chiropractors in 3 countries before learning how to heal himself. His wife Dorothy was diagnosed with Parkinson’s Disease in 2007, possibly triggered by Hurricane Katrina. He is writing a book on health after 40+ years of researching health topics as diverse as cold lasers, holistic dentistry, energy healing (in which he holds several certificates), and releasing stressful emotions. John and Dorothy currently live in Mississippi and have three adult girls. He loves people, doing tai chi, playing tennis, bicycle riding, learning about health, and sharing health knowledge with others. Visit John’s website at www.chichoices.com

Holly Hughes     May 18, 2011 Radio Show

Holly Hughes is an Intuitive Energy Therapist teaching the application of whole body health through her blog “Health Goddess Insight” and in the zen den at EnergyPsi. She offers intuitive insight and practical tools for whole body health as a certified Expressive Yoga Dance™ instructor and wellness coach focused on preventative health through movement, mindset and nourishment incorporating Guided Meditation, Vibroacoustic Therapy (VAT) and Qivana’s QORE™ and MetaboliQ™ Systems for optimal whole body wellness. For more information about Holly visit: http://www.hollyhughes.info

Robert Rodgers  Host of Radio Shows

Robert Rodgers, Ph.D. is the host of the Parkinsons Recovery Radio Show. He conducts ongoing research to identify the various options that help people with Parkinson’s reverse their symptoms. After resigning from his position as a tenured professor at the University of Kentucky, he founded Parkinsons Recovery in 2004. Robert’s Parkinsons Recovery Blog answers questions about Parkinson’s: www.blog.parkinsonsrecovery.com

Bianca Molle     June 15, 2011 Radio Show

Bianca stumbled onto the healing path when looking for relief from the pain, stiffness, and fatigue of Parkinson’s Disease. She found Wisdom Healing QIgong and reconnected her body with her mind. As a result the Parkinson’s disappeared. This former middle school teacher is now a vibrant qigong  health and wellness coach, with a specialty in Parkinson’s Disease and a passion for sharing her message of hope and healing. For more information visit: http://www.biancaschichat.com

Karl Robb : March 20, 2012 Radio Show

Karl Robb has had Parkinson’s disease for over twenty years. Karl believes he has had PD since he was seventeen years old and was diagnosed at the age of twenty-three. Now in his forties, he is a Parkinson advocate, entrepreneur, inventor, writer, photographer, and speaker on PD issues.

He has helped the National Parkinson’s Foundation (NPF) organize several young-onset conferences and has worked closely with the Parkinson Action Network (PAN) as a State Director for several years. He currently sits on the Board of PAN and the Parkinson Voice Project (PVP).

Karl holds a bachelor’s degree in English from the University of North Carolina at Chapel Hill. His writing has been featured in The New York Post and he has just finished his first book, A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease. He has appeared on BBC radio, the CBS Saturday Evening News, Japanese television, as well as several local Washington, D.C., television stations.

Karl, with his wife, Angela, received the 2008 Murray Charters Award for outstanding advocacy. Together they run a Parkinson’s support group in Northern Virginia. Karl maintains a blog on PD, “A Soft Voice in a Noisy World.”

Karl has practiced Reiki for over a dozen years and has attained the level of Master in the Reiki Jin Kei Do lineage. Both he and Angela have taught several classes on Reiki. Visit Karl’s wonderful blog at: http://pdpatient.wordpress.com

Subscribe to Sunday Connections Archives

Robert Rodgers, Ph.D.
Parkinsons Recovery
www.parkinsonsrecovery.com

Call 877-526-4646 to Subscribe 

2 thoughts on “The Best Parkinsons Discussion Group Ever

  1. I have tried to register and track symptoms, but I take it that is only for subscribed members?

    I happened upon your blog from a google search of why my toes curl.

    I was also told by my mother’s neurologist that treated her for Parkinson’s, that the disease was not hereditary.

    I would like to understand more.

    Nancy Mol

    1. Hi Nancy:

      Symptom Tracker is free! Visit http://www.symptomtracker.info/parkinsons You have to register (which is free) and then you
      are “good to go.”

      Be sure to sign up for the free newsletter (enter your email address and first name on the panel to the right). You will receive notices about all the programs and events I sponsor through Parkinsons Recovery.

      As for getting more information – a “ton” of information is available on my websites. The portal to all the websites is: http://www.parkinsonsrecovery.com All radio shows over the past six years have been recorded and archived. It is a great resource! http://www.blogtalkradio.com/parkinsons-recovery

      Robert Rodgers PhD
      Road to Recovery from Parkinsons Disease

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